Wednesday, November 23, 2011

Miles away????

Time for an update. So Jared had his apt. with the hepatologist yesterday. And we left feeling quite discouraged. The Dr. said he thinks the pains Jared has been having are his gallbladder and is doing some tests and looking at removing it now if it needs to be. He went over his chart and asked a bunch of lame questions...seriously, LOL. To sum it up he told us Jared is miles away from Transplant...."miles" what the heck does that mean?? The appt. took 2 1/2 hours and what we took from it was it is going to be a long time before they even consider listing him, and he scheduled our next clinic appt. for next May. I was annoyed and we were both a little upset when we left. Well I decided I wanted more answers so I called the transplant coordinator this morning. Long story short. Jared's MELD score jumped from a 10 last August to a 14 as of yesterday. They will list him at a 15. She said with a 14 they recheck the MELD every three months unless he gets really sick, then we can call them and they will check it. Patients usually get the transplant when the MELD reaches somewhere in the 20's. She is going to speak with the Dr. and let me know what the game plan is. So anyway I feel a little better now and I am not thinking it is going to be years away. On another note I am happy to tell everyone the cookbooks have been completed and shipped and should be here by Monday or Tuesday of next week YAY

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