Some people have asked or mentioned that we should have a way for people to donate online to help us with the overwhelming medical bills that continue to add up. Someone told me about this site so I checked it out. It liked it so I went ahead and set it up. Here is the link http://www.gofundme.com/3apl6o. Please feel free to share it.
We have had financial trials before, but this has been the hardest to try to keep up with. we literally have thousands of dollars in medical bills we are trying to pay and the amount rises monthly. If anyone would like to donate any amount is helpful and greatly appreciated. Thanks for all the love and support.
Tuesday, June 18, 2013
TIPS
At Jared's last clinic appointment the doctor mentioned a procedure that may be in Jared's future. He continues to have fluid accumulate in his abdomen and they have to keep draining it off. There are always risks to having the fluid drained, which he experienced last October. Since the diuretics are not keeping the fluid off enough they may consider doing a TIPS. It is where they go in and place a stent to create new connections between two blood vessels in the liver. There are always risks with any procedure. The worst risk with this one is; because he already has a bad liver it could cause him to go into complete liver failure. We don't necessarily want that because there is always the possibility they wouldn't be able to find him a new liver in time. I don't know what the doctors will decide at this point. It all depends on the acities that continues to build up.
Click here to read more information about TIPS.
Click here to read more information about TIPS.
Passing time
It's been a year and a half since Jared was officially put on the list. Passing time is hard and discouraging. I can't imagine what it is like for him. To be sick all the time, to never feel well, to have no energy and always be in pain. His face and arms and legs have become very thin too. His abdomen is always swollen from the ascites, which makes him very uncomfortable. His MELD score still hovers in the 16 or 17 range. He is still able to go to work which I am grateful for; I know it is hard for him. I know the time will come for him to get his transplant but waiting is hard.
Another hospital stay
I should have written about this months ago but I got lazy and kept putting off. It happened last October (2012).
Jared ended up in the hospital again after a paracentesis (procedure to drain fluid off his abdomen). During the procedure they punctured his bowel allowing bacteria to seep into a sterile area. We went home after the procedure and he quickly became ill. He had a high fever and was in a lot of pain. We went to the ER where he was admitted. The white blood cell count was over 90,000 and should have been 0, so he was pretty sick. They did lots of tests and put him on antibiotics. He was there for 4 days before they released him. During his hospital stay his MELD got as high as 19. It has now dropped to 16 and stays in the 15 to 17 range most of the time.
Jared ended up in the hospital again after a paracentesis (procedure to drain fluid off his abdomen). During the procedure they punctured his bowel allowing bacteria to seep into a sterile area. We went home after the procedure and he quickly became ill. He had a high fever and was in a lot of pain. We went to the ER where he was admitted. The white blood cell count was over 90,000 and should have been 0, so he was pretty sick. They did lots of tests and put him on antibiotics. He was there for 4 days before they released him. During his hospital stay his MELD got as high as 19. It has now dropped to 16 and stays in the 15 to 17 range most of the time.
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